We got the Ugly two weeks ago. This week, it was the Bad. Mike had an MRI of his spine to make sure the disease had not spread there. The happy news is that there are no tumors or lesions on Mike’s spine. The not-so-happy news is that the nerve at the base of Mike’s spine is somewhat thickened, which indicates that there are Melanoma cells floating in the area, and coating the nerve. So in addition to getting Whole Brain Radiation (Mike has now finished 5 of the 15 daily treatments), Mike will also be getting radiation to his lower spine. He will receive 14 treatments. Just like the Whole Brain Radiation, this treatment will also be every day for the next three weeks. The side effects will be nausea, fatigue and lower back discomfort, of course.
The comforting part of this whole ordeal is that they discovered the spinal nerve thickening early enough that a tumor had not formed, and hopefully, the radiation will prevent a tumor from ever forming in that area. Our radiation oncologist told us that this radiation is “preventative” and he would rather do it now when it is “elective” than wait until it becomes an “emergency.” He actually used all of those words. Not the best news to get, but not the worst either.
We got the Ugly and the Bad; Good must be on her way. We will be waiting.
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8 comments:
Nancy and I just read the entire blog, and are very impressed...with both of you. You two are dealing with this incredibly, and we admire you for that. Please let us know if there is ANYTHING at all we can do to make this easier for you. Continue your fight, and stay stong.
PS. I'm in the middle of becoming a Catholic, and my first Prayer every day is for Mike. So you've got that going for you...which is nice!
As my kids say when we talk about Mike, which is a lot,they say, "if he can slay that dragon every day he can slay the cancer". We have been praying for you guys every step of the way. Can't wait to see you!
Its hard to put into words what I am feeling right now after reading your blog but I just wanted to say that I think the two of you are amazing and strong and are such an inspiration for anyone who has struggled or suffered or thinks that they can't handle what life throws at them.
Brendan and I were devastated about the most recent news and we didn't really know what to do- call, come visit, send a card, whatever. I think this blog is a great idea and I thank you Liz for sharing all your private thoughts and emotions because it certainly helped me understand and appreciate everything that you guys have endured and I know its not easy to share your personal feelings with the world. As you said, Mike never really let on to how much he was really going through (and probably never will)and I didn't want to keep badgering the kid. Anyway, I am so grateful to have read your story and feel better knowing that you guys are doing OK despite all the bullshit that you have endured. It truly is amazing to see how strong and positive you continue to be.
Mike, Brendan and I think about you everyday and you are in our prayers every night. Your strength and determination will get you through this and just know that you have so many people who love and support you both. And Liz, you are right about hope! Hope is the best thing in life and if you continue to believe in hope, it will get you through the worst of times and bring you the happiness that you both deserve.
God bless you, we love you both very much.
Amy and Brendan
Mike is luckyt to have you! Keep fighting!!
Liz and Mike, I am Renays mom and always asking her how things are for you. She emailed me this so that I can see for myself. I say a little prayer for you each day to help you get through this journey and roller coaster ride that you are on. Slay that F-----g dragon!!! Linda Eleuteri
Hi Liz,
I am sorrier than I can say that Mike has been fighting some a hard battle recently. I know that it means the world to him to have you in his corner. You are both very much in my thoughts. Take care, Carver (MPIP)
You two are absolutely amazing! We are all rooting for you. God Bless.
Martine
Dear Mike and Liz,
Words could never express the love I feel for both of you. I was so thrilled to have the opportunity to finally meet the two of you in Nov.. You were both so funny... Mike, the Philadelphia.. NYC cabbie.... I rememeber laughing as he zipped into the hotel the wrong way ( not knowing it was the two of you). Your e-mail that day teasing each other.. It was refreshing to see a wonderful young couple so in love and with so much respect for each other.
Liz, you and Mike have been there for so many Melanoma patients along the way and noone could ever express the gratitude for all you have done for the community.. I am sure not many people know the extent you have helped so many.
Sadly, right now you have been dealt a rough deck, but your fighting spirit will get you through this time. You are amazing, so young, so determined and optimistic. There aren't many I would trade places with in this battle, but, Mike for sure. He is strong, hopeful and filled with love and compassion. He always sees the glass half full. Please know I am here for you in any way you need me. Thank you for including me to share in your blog. I am sending you big hugs and healing angels my friends. Hang in there!!!!!! Love and Light Carole
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